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BusyMumJane
 Post subject: Hi
PostPosted: Wed Sep 09, 2009 11:08 am 
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CMTer

Joined: Mon Feb 16, 2009 1:50 pm
Posts: 2
Just wanted to say hello to everyone here. I suffer with HNPP which I understand some others of you also do. I live in Kent, I am 43 years old married and have 3 children (13, 11 & 10). I have known of my HNPP for some years now and like everyone I have good days and bad days. My eldest & youngest also have HNPP as does my Mum.
Hope to catch up with some of you soon.
Jane x


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annie
 Post subject: Re: Hi
PostPosted: Wed Sep 09, 2009 11:22 am 
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The Dizzy Blonde
User avatar

Joined: Sun Jul 19, 2009 4:26 pm
Posts: 571
Location: Burnley, Lancs
Name: Ann Sutcliffe
I do not have CMT: I do not have CMT. My husband and my son both have HNPP
Pleased to meet you Jane & welcome to the site, keep posting
Love anniexx


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SAM
 Post subject: Re: Hi
PostPosted: Wed Sep 09, 2009 11:32 am 
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Site Admin
Site Admin
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5117
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
Hi Jane

Welcome to the forum! :wave:

:bighug:

Yes we have one or two with HNPP but even those with CMT are in pretty much the same boat. ;)

Thanks for introducing yourself, I look forward to seeing more of you :thumbs: :kiss:

Sam
xxxx

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BLOG - Updated SUNDAY 31 JANUARY 2010 - Click HERE to view

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Jackie B
 Post subject: Re: Hi
PostPosted: Wed Sep 09, 2009 12:59 pm 
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Support Team
Support Team
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Joined: Tue Nov 11, 2008 6:21 am
Posts: 1659
Location: Rustington.
Name: Jackie
CMT Type: cmt type 1a
Hi there. :thumbs: :wave:


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leafpotter
 Post subject: Re: Hi
PostPosted: Wed Sep 09, 2009 2:45 pm 
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CMTer
User avatar

Joined: Tue Nov 04, 2008 12:17 pm
Posts: 427
Location: Bristol
Name: Jon
CMT Type: HNPP
:wave: Hi Jane

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HNPP
Meniere's Disease

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Sally
 Post subject: Re: Hi
PostPosted: Thu Sep 10, 2009 7:26 am 
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Super Granny

Joined: Thu Nov 27, 2008 8:38 am
Posts: 1229
Location: Lancashire
CMT Type: HNPP
Hi Jane :wave: and welcome to the site, there are a few HNPP people here, but the CMT people have many of the same symptoms.

Good to meet you :bighug:

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We can't change life, so laugh at it.

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Rhyafire
 Post subject: Re: Hi
PostPosted: Fri Sep 11, 2009 11:01 am 
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CMTer
User avatar

Joined: Wed Jun 24, 2009 7:58 pm
Posts: 197
Location: Canterbury
I do not have CMT: I have the opposite HNPP PM22 Deletion
Ah Ha!! :hello: There you are :kiss: Lovely to see you here Jane. Looking forward to Hot chock and cake and a long catch up! :bighug:

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Everyone has a gift, some just take a little longer to unwrap theirs... x

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SAM
 Post subject: Re: Hi
PostPosted: Fri Sep 11, 2009 11:37 am 
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Site Admin
Site Admin
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5117
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
oooh, I take it you two know each other? ;)

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BLOG - Updated SUNDAY 31 JANUARY 2010 - Click HERE to view

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Rhyafire
 Post subject: Re: Hi
PostPosted: Fri Sep 11, 2009 3:03 pm 
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CMTer
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Joined: Wed Jun 24, 2009 7:58 pm
Posts: 197
Location: Canterbury
I do not have CMT: I have the opposite HNPP PM22 Deletion
:D Yep! Jane (who is fab! ;) ) lives about 30 miles from me, we 'do lunch' and shopping and cake and hot chocolate which is wonderful :cheers: . We met through the most worthy and beautiful person Jon Leafpotter :worship: Whom I shall always be indebted to for finding new lovely friends :wuvu:

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Everyone has a gift, some just take a little longer to unwrap theirs... x

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Anna77
 Post subject: Re: Hi
PostPosted: Fri Sep 11, 2009 8:07 pm 
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CMTer
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Joined: Mon May 11, 2009 9:44 pm
Posts: 754
Location: dorset
I do not have CMT: but my partner (s.j.lewis) has CMT type1a and so does my eldest daughter
hello Jane. welcome :bighug:

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To get back my youth I would do anything in the world, except take exercise, get up early, or be respectable.

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BusyMumJane
 Post subject: Re: Hi
PostPosted: Sat Sep 12, 2009 10:04 pm 
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CMTer

Joined: Mon Feb 16, 2009 1:50 pm
Posts: 2
Hi All, Looking forward to 'chatting' with you all soon. CU Monday Rhya, around 10am at the Towing place :bighug: Looking forward to a hot chocolate and a cake (or two!) :lol:


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Finn
 Post subject: Re: Hi
PostPosted: Sat Sep 12, 2009 10:10 pm 
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CMTer

Joined: Fri Aug 14, 2009 9:21 pm
Posts: 83
Location: Switzerland, German speaking area
Name: Elina
CMT Type: Carpal tunnel syndrom, operation autumn 2009; HNPP tested for Cousin, relatives have HNPP symptom
Hi Jane and welcome :bighug: ... you take your time!


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