CMT Central

Free Support & Chat Forum - Charcot Marie Tooth Disease
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 Post subject: Hi
PostPosted: Tue Jun 30, 2009 6:44 pm 
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CMTer
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Joined: Tue Jun 30, 2009 6:39 pm
Posts: 32
Location: south coast hants/Dorset
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Name: iain
CMT Type: Not sure
Hi to everyone im iain live in new milton on the south coast is there any body ho lives in that area for support

im 48 have had CMT since birth LOL

am on the waiting list go in for surgery on the 30th of july
for triple fusion and soft tissue release operation on first foot
can anybody tell me the recovery time !!!


mant thx speak soon


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 Post subject: Re: Hi
PostPosted: Tue Jun 30, 2009 6:48 pm 
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CMTer
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Joined: Mon May 11, 2009 9:44 pm
Posts: 754
Location: dorset
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I do not have CMT: but my partner (s.j.lewis) has CMT type1a and so does my eldest daughter
hi and welcome.
we're (me and simon) on the south coast too (dorset).

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 Post subject: Re: Hi
PostPosted: Tue Jun 30, 2009 11:41 pm 
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Site Admin
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5806
Location: Settle, N Yorks
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Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
you having the triple arthrodesis (ankle bone fusion)?

I can't offer advice on recovery time for the triple arthrodesis. Personally I've never considered it because of the restricted movement afterwards.

Welcome by the way :bighug:

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 Post subject: Re: Hi
PostPosted: Wed Jul 01, 2009 8:09 am 
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Super Granny

Joined: Thu Nov 27, 2008 8:38 am
Posts: 1358
Location: Lancashire
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CMT Type: HNPP
Hi Iain and welcome :wave:

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 Post subject: Re: Hi
PostPosted: Wed Jul 01, 2009 11:13 pm 
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Charmer Extraordinaire
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Joined: Tue Nov 04, 2008 10:40 am
Posts: 579
Location: Eastbourne..... U.K
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CMT Type: cmt type 1
Hi Iain...

Good to see ya here fella............ I live on the south coast too...... Eastbourne..... HAVE HAD CMT FOR 21 YEARS SINCE 17.. NOW 38...
But have never had any kind of surgery on my feet, so canny give ya any advice on that... Sorry... But always about on here if ya wanna chat, or ya need support getting through a difficult day.... week, month, year, life.......... :lol:

Catch Ya Mate...........


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