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Forum...... www.charcotmarietooth.org
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 Post subject: HOW DID YOU FIND THIS FORUM?
PostPosted: Mon Nov 03, 2008 10:52 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
I would love you hear where you all found this website

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Mon Nov 03, 2008 11:11 pm 
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Joined: Mon Nov 03, 2008 2:39 am
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Location: Settle, N Yorks
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(Post transferred from previous forum)

Toby wrote:
Found the website under google search for cmt.


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Mon Nov 03, 2008 11:13 pm 
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Joined: Mon Nov 03, 2008 2:39 am
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Location: Settle, N Yorks
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CMT Type: CMT Type 1 (sub type as yet unknown)
(Post transferred from previous forum)

SAM wrote:
Wow, really??

I didn't realise it was showing up on google searches yet!

Can you remember exactly what you searched for and on what page it came up (was it anywhere near the top of the results?!!!)


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Mon Nov 03, 2008 11:15 pm 
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Joined: Mon Nov 03, 2008 2:39 am
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Location: Settle, N Yorks
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Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
(Post transferred from previous forum)

Toby wrote:
Only ever use google for searches, just tried goin back over my history to try an locate original search but canny find it, it is possible i coulda dropped another key word in, sorry cant be more specific, sometimes ya just hit something and find yaself where ya need to be, propably more luck than judgement..... but definately google search and i rarely have the patience to go beyond the first 3 or 4 pages.. if i recollect i`ll let ya know...


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Mon Nov 03, 2008 11:16 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
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Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
Cheers Toby :D

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Nov 04, 2008 11:41 pm 
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Joined: Mon Nov 03, 2008 2:39 am
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Location: Settle, N Yorks
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CMT Type: CMT Type 1 (sub type as yet unknown)
Come on guys! Answers to this please!

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Fri Nov 07, 2008 11:51 pm 
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Mighty Midget
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Joined: Mon Nov 03, 2008 5:33 am
Posts: 291
Location: Settle
Highscores: 5
Name: Claire
I do not have CMT: but my partner SAM does
This Forum is very clever - it found me!!!

I received an email telling me!!


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Fri Nov 07, 2008 11:58 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
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Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
:suspicious: hmmm . . . . that would be because I registered for you :hide: :lolup:

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Wed Nov 19, 2008 2:43 am 
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Joined: Wed Nov 19, 2008 12:33 am
Posts: 78
Location: Socorro, New Mexico
CMT Type: 1A
wikipedia

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Wed Nov 19, 2008 8:41 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
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Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
Thanks for letting me know this. :wahoo:

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Dec 23, 2008 7:04 pm 
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CMTer

Joined: Thu Dec 18, 2008 8:00 am
Posts: 101
Location: Wirral
CMT Type: HNPP
Hi Sam

I have HNPP and Jon posted the link on our website to this one for us.

I haven't had a proper look at your site yet as for some reason I have been a little busy the last few days !!!!!

Take care
Mary

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Dec 23, 2008 9:56 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
:bighug: Awwww, great to see you here Mary. I hope you can find the time to post soon ;) I have NO idea why you would be busy right now :tongue: ;)

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Thu Feb 05, 2009 5:02 pm 
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Joined: Thu Feb 05, 2009 3:19 pm
Posts: 84
Location: Lancashire
I do not have CMT: Husband and eldest son (5) both have CMT 1a
Hi Sam

I followed the link in one of your posts on the CMT UK forum, think it was in your siggy?


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Thu Feb 05, 2009 10:24 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
brilliant, thanks for letting me know Gemma

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Mar 03, 2009 11:19 pm 
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Joined: Tue Mar 03, 2009 10:55 pm
Posts: 5
SAM wrote:
brilliant, thanks for letting me know Gemma

I found this forum because my dad told me to look it up.
Thanks dad mwah x x x
:bighug:


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Mar 03, 2009 11:24 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
is your Dad a member on the forum Tammy?

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Wed Mar 11, 2009 4:53 am 
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Joined: Tue Mar 10, 2009 4:21 pm
Posts: 191
Location: Florida, USA
Highscores: 99
Name: Susan
CMT Type: CMT 2
Hi Sam,

Your smiling face & and an article in the Craven Herald & Pioneer, were online for the March 8th Sunday edition. My daily Google News Alert for "Charcott-Marie-Tooth Disease" brought this to my attention, and of course, I just had to find your website. Thanks again!

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Wed Mar 11, 2009 9:37 am 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
SamBird wrote:
Hi Sam,

Your smiling face & and an article in the Craven Herald & Pioneer, were online for the March 8th Sunday edition. My daily Google News Alert for "Charcott-Marie-Tooth Disease" brought this to my attention, and of course, I just had to find your website. Thanks again!


Yeh, Aint the fundamental spelling mistake great :roll: You'd have thought they'd have got this right, if nothing else :lol:

Great to see you here anyway. :bighug:

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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Tue Mar 17, 2009 10:23 pm 
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Joined: Sun Mar 08, 2009 10:27 pm
Posts: 13
I got here via a group on facebook but can't remember which one..


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 Post subject: Re: HOW DID YOU FIND THIS FORUM?
PostPosted: Sun Mar 22, 2009 1:01 pm 
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Joined: Mon Nov 03, 2008 2:39 am
Posts: 5110
Location: Settle, N Yorks
Highscores: 7
Name: Sam
CMT Type: CMT Type 1 (sub type as yet unknown)
thanks xip :D

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